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Recent Posts
- ‘Running for Rare’: NORD a Charity Partner of 2021 NYC Marathon
- HAE Preventive Therapy Not Cost-effective, Prices Need to Drop 50%
- Orladeyo Approval for HAE Under Review in Canada, Switzerland
- Phase 2 Trial of Oral KVD824 in Preventing HAE Attacks to Open
- ‘Not Alone in the Dark’: New Guide for, by Caregivers of Children With Rare Diseases
- Potential Blood Biomarkers for Types of Angioedema Noted in Study
- Register Now for Global Genes’ RARE Patient Advocacy Summit
- Takhzyro With Long-term Use Safely Prevent HAE Attacks, Study Finds
- NORD Rare Disease Summit, Online Oct. 18-19, Open for Registration
- Advocates Lobby US Congress During Virtual Rare Disease Week