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Recent Posts

• Advocates Can Try for Grants Ahead of Rare Disease Week on Capitol Hill
• Study Urges Close Monitoring of Patients Starting Off-label Takhzyro
• Glenmark Offering New Firazyr Generic in US
• Pharma, Patient Associations Join Efforts for HAE Awareness Day
• Case Report: ACE Inhibitor Likely Triggered Post-surgery Angioedema
• Haegarda Now Available to HAE Patients Across Canada
• UK Agency Approves Orladeyo to Prevent HAE Attacks
• Off-label Firazyr Use Found Safe in Small Study, but Biomarkers May Help
• Japanese Researchers Identify New Gene Mutation Linked to HAE
• Orladeyo Approved in EU as 1st Oral Treatment to Prevent HAE Attacks