Hollie Amadio was diagnosed with angioedema at 25 after first showing symptoms at 16. She was then later diagnosed with multiple sclerosis as a comorbidity. Hollie is passionate about legislative changes and patient advocacy. Living near Washington D.C., she has become a dedicated voice for those often unheard. Through her writing, she aims to raise awareness, advocate for rare disease communities, provide crucial resources, and drive meaningful change for those facing similar challenges in their health journeys.
Rare Disease Week on Capitol Hill is now behind us, and I had the honor of participating this year with the U.S. Hereditary Angioedema Association (HAEA) and EveryLife Foundation’s Rare Disease Legislative…
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