How I’m enduring my dual battles of body and mind
Some days, I wake up and immediately feel the weight of my own body, as if my bones are made of lead. Other days, I wake up with my mind racing before I’ve even…
Living Rare, Speaking Loud — Hollie Amadio
Hollie Amadio was diagnosed with angioedema at 25 after first showing symptoms at 16. She was then later diagnosed with multiple sclerosis as a comorbidity. Hollie is passionate about legislative changes and patient advocacy. Living near Washington D.C., she has become a dedicated voice for those often unheard. Through her writing, she aims to raise awareness, advocate for rare disease communities, provide crucial resources, and drive meaningful change for those facing similar challenges in their health journeys.
Featured Post
Making our voices heard for Rare Disease Week and beyond
Rare Disease Week on Capitol Hill is now behind us, and I had the honor of participating this year with the U.S. Hereditary Angioedema Association (HAEA) and EveryLife Foundation’s Rare Disease Legislative…
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