A rapid response to Ruconest (recombinant C1 esterase inhibitor) may support an otherwise difficult diagnosis of a rare form of hereditary angioedema (HAE) marked by normal levels of C1-inhibitor (C1-INH) protein, a study suggested. This form of the disease, HAE-nl-C1INH, is challenging to diagnose because there are…
Discussion
Note: This column describes the author’s own experiences with cannabidiol. Not everyone will have the same response to treatment. Consult your doctor before starting or stopping a therapy. Living with a rare disease looks different for everyone. Many of these conditions involve pain, and the mental health impact can be…
Throughout 2025, the team at Angioedema News brought readers the latest updates on research, treatments, clinical trials, and real-world experiences related to angioedema. From progress in gene-editing approaches to insights into how patients manage swelling attacks, our goal has been to support people living with this rare condition…
Discussion
It has been a roller-coaster ride of a year for me, crazy busy and jam-packed with one concern after another — personal matters, family matters, and lots of health problems. Hereditary angioedema (HAE) is my major health diagnosis these days, although I also have diagnoses of chronic Lyme…
Angioedema is the formal medical term for swelling under the skin. It usually occurs as part of an allergic reaction, but has forms that are not due to allergies.
Acute angioedema often occurs as part of an allergic reaction to various allergens or triggers. These can include certain foods, insect bites or stings, medications, and natural rubber products like latex.
Angioedema and hives often occur at the same time. However, angioedema causes large, thick welts which may not be itchy, whereas hives are smaller and usually itchy.
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