Taking action with hereditary angioedema

Educating yourself about HAE, including who should be on your support team, what to look at in terms of finances, and where to find other support and resources, can you help you come to terms with an HAE diagnosis.

Although swelling is a primary HAE symptom, people with HAE may experience a range of other disease-related symptoms, which can accompany swelling attacks or even happen without swelling.

A number of therapies can help manage HAE swelling attacks, including those used as preventive treatment to reduce the risk of attacks, as well as on-demand or acute treatments to resolve attacks as they are happening.

Danita LaShelle Jones wishes someone had provided her a list of things she should know after her daughter was diagnosed with HAE. To help others in the same situation, she has written her own HAE Top 10 List.

HAE attacks can't always be prevented, but learning what your triggers are and what symptoms you experience, as well what preventive therapies are available, can help you manage the disease.

One of the most common triggers of an HAE attack is stress, which can be from something physical or emotional. Stress management may include trying coping strategies, making lifestyle changes, and taking medications for HAE attack treatment.