Columns

Sometimes fixing a problem is easier than we expect

“I called to ask your scholarship provider,” my dad said over the phone. “They think you’re a freshman.” The problem? I was a second-semester sophomore. At the beginning of my fourth semester of undergrad studies, my father discovered that one of my scholarships hadn’t been applied to my account. The…

Are you tired, fatigued, or exhausted? What’s the difference?

Everyone gets tired sometimes. Some of us, especially when we push ourselves, become fatigued. And especially with rare diseases, many of us truly understand exhaustion. In today’s vernacular filled with sarcasm, we frequently hear people, even children, say, “I’m exhausted!” While the words are interchangeable according to Merriam-Webster, terms used…

Making our voices heard for Rare Disease Week and beyond

Rare Disease Week on Capitol Hill is now behind us, and I had the honor of participating this year with the U.S. Hereditary Angioedema Association (HAEA) and EveryLife Foundation’s Rare Disease Legislative Advocates program. The week, which started on Feb. 24, was nothing short of incredible; it was…