Hello, and welcome to my column. My name is Natalie, and I’m a 59-year-old rare disease patient, along with several of my family members. This column will focus on my most recent rare disease diagnosis: hereditary angioedema (HAE). I named my column “Dancing with Rare Disease” because in addition…
Dancing with Rare Disease - a Column by Natalie Sirota
Recent Posts
- Tranexamic acid falls short in ACEI-induced angioedema study
- Woman develops lung swelling from common antifungal medication: Report
- New study explores how adults with HAE recognize and manage feelings
- Sometimes, even our best efforts aren’t enough
- Ekterly use urged for kids with HAE 12 and older in new international guideline