What’s happening? Why can’t I fit into these pants? I just wore them last week. The waistband is so tight it’s painful! I ask my family, “Can you see how swollen I am?” I had no idea what was happening to me, other than my sense that I looked fine…
Dancing with Rare Disease - a Column by Natalie Sirota
Hello, and welcome to my column. My name is Natalie, and I’m a 59-year-old rare disease patient, along with several of my family members. This column will focus on my most recent rare disease diagnosis: hereditary angioedema (HAE). I named my column “Dancing with Rare Disease” because in addition…
Recent Posts
- Trying a new treatment for HAE didn’t go as I’d hoped
- Treatment helps heart attack patient with reaction tolerate aspirin
- Common anti-nausea drug triggers intestinal swelling: Case report
- Oral HAE therapy may improve control after patients switch treatments
- I’m proud of how my disability advocacy has grown over time