At 17, Hollie Amadio began a nine-year search for answers before being diagnosed with hereditary angioedema. Now, she’s an advocate, fighting for faster diagnoses and greater awareness.
Living Rare, Speaking Loud - a Column by Hollie Amadio
Recent Posts
- Kid-friendly Orladeyo ‘sprinkles’ now FDA-approved for older HAE patients
- A hereditary angioedema diagnosis can be spooky
- HAE specialists cite costs, supply gaps as barriers to recommended care
- Acknowledging my subconscious fears as a caregiver
- I encourage patients to self-advocate, but then I couldn’t do it myself