HAE Life Hacks

Planning ahead for HAE attacks

Tad Rockwell explains why preparation and backup plans are essential when living with HAE

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About the Series

We listened to the conversations happening across the myasthenia gravis community to uncover the questions and challenges that matter most. In this video series, community members share their personal journeys, hard-won wisdom, and advice for navigating life with this condition. These are voices of experience from real people who truly understand.

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Helping children with HAE feel more in control of their care

Danita LaShelle Jones shares how small choices in care can help children with HAE feel more in control.

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Training loved ones to step up in HAE crises

Nikki Scroggins shares how she's trained her partner to care for her in emergencies.

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Planning ahead for HAE attacks

Tad Rockwell explains why preparation and backup plans are essential when living with HAE

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Handling insurance challenges with HAE

Danita LaShelle Jones shares how involving physicians early helped her family navigate insurance denials and secure care.

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