Tad Rockwell, an HAE patient advocate, explains why preparation and backup plans are essential when living with HAE.
Transcript
You have to be extremely prepared, because you have to assume that once the attack comes, you’re going to be, at some level, either mentally or physically incapacitated.
And so this is all about making a plan A, a plan B, a plan C, and a plan D. So you have your primary plan. That’s your frontline plan. And then you’re going to have your contingencies, because at some point they will fail, and you need to be ready for those.
So prior planning is everything. And you know, you cannot be in a space of denial. You have to understand exactly what your rare disease is and what the consequences are is if you’re not prepared.
