Daryl Sirota, a devoted caregiver to four family members with different forms of angioedema, shares how his family has adapted their life planning.
Transcript
Being able to to back up and recalibrate and readjust my expectations is something that I’ve had to learn.
The most important thing that I have found is that if I can stop and put my own expectations on pause — and even if that was an expectation for what I was planning to do versus what the family is planning to do — to be able to say, “It’s OK if we put this on hold, and we wait for the swell.
We ride it out, we determine what’s the best course of action is going to be, whether that’s going to be emergency meds, canceling the gig, we’ll postpone till tomorrow.”
And recalibrating has been a challenge, especially since before I had an expectation and we were ready and we made plans — “We’re going to go do those plans” — and now those plans can be scuttled in transit.
