Hollie Amadio, diagnosed with hereditary angioedema at 25 after first experiencing symptoms at 16 and later with multiple sclerosis, reflects on wishing what she wishes she did differently after her diagnoses. Read her column, “Living Rare, Speaking Loud.”
Transcript
I would speak up sooner. Be a little more persistent in my questioning.
Not just taking the “We’re unsure” and being released from the hospital as the answer. And just putting forth the footwork.
And even though I was not educated on how to do that, figuring out how — asking the questions that I needed to ask and just putting in the work that I should have because I was trying to get back to work.
But at the end of the day, I spent more time out of work because I didn’t do that. And I wasn’t able to get the treatment that I needed and keep it at bay as much as possible sooner rather than later.
But I just would have asked questions and been more persistent.
