Natalie Sirota has hereditary angioedema and also has two children with it. She shares how she seeks clarity in care by pressing for answers and turning to trusted resources.
Transcript
So on the occasion that doctors have said anything confusing to me in the clinic about a diagnosis or how to treat it, I typically ask for further explanation and clarification.
Sometimes they still talk at a high level, and it’s difficult to understand them. So I will kindly attempt to press for answers if we’re still not communicating.
I will eventually, once I get home, log on to various HAE-related resources websites and look up even research from various medical resources.
