Leah Sirota, who was diagnosed with hereditary angioedema in 2019, reflects on the only certainty she has found amid HAE’s chaos.
Transcript
The most important thing that I’ve learned is to trust yourself and to be certain and sure in yourself, because you are the most important part of that care team, because you are a part of that care team.
I think that it’s important to be certain in the uncertain.
It’s not always possible to know everything about a treatment or know everything about a condition. And when you have multiple chronic conditions, or just one, even, chronic condition, it’s really hard to know things for certain.
So, being able to at least be certain in yourself, you can then learn to be certain in the uncertainty of the chronic illness itself.
