Nikki Scroggins, an HAE patient advocate, shares how she has prepared her partner to help her during HAE crises.
Transcript
So what I did is I made sure that I have all of my HAEA toolkits with letters to the ER, things like that.
I have a copy of them in Google Drive, and I also have a printed copy that I keep in the same place in a bag that I call my go-to hospital bag.
Like if you are pregnant and you were going to have a baby, right? And you would have a go bag, right? You kind of have to have one for HAE too, because you never know when it’s going to happen.
I also have my partner run through drills with me, like, “OK, where are the bags? Which medications do we take out of the fridge? Where is the Google Drive?” To make sure — because, you know, people have their own lives. Obviously we know where that is and it’s important to us, but there may be an instance where you can’t speak for yourself and you need that person to know.
So every few months I’m like, “Hey, show me the meds, show me the bag, show me the Google Drive.” Just make sure that they don’t forget.
