• Ruconest Can Safely and Effectively Treat Acute HAE Attacks in Children, Phase 2 Trial Shows
  • Macedonian Gaucher Activist Publicizes Plight of Rare Disease Patients
  • World’s First Alport Stamp Is Macedonian Mom’s Latest Win for Rare Disease Patients
  • iTHRIVE to Fund Early Research Projects, Including Hereditary Angioedema
  • NORD Honors Industry, Patient Advocates at Rare Impact Awards Gala
  • Eurordis Unveils Integrated-care Initiative for Rare Disease Patients
  • Hereditary Angioedema Patients Have High Incidence of Fatty Liver Disease, Study Suggests
  • ‘Rare Barometer’ Program Helps Eurordis Shape EU Rare Disease Policy
  • Takhzyro Induces Rapid Resolution of Hereditary Angioedema Attacks, New Data Analysis Shows
  • Method of Blocking Kallikrein Could Help Develop Better HAE Therapies, Study Suggests
  • KVD900, KalVista’s Investigational Therapy for HAE, Fares Well in Phase 1 Trial
  • Agency Unveils RaDaR to Help Patient Groups Develop Rare Disease Registries