Columns

At this year’s HAEA National Summit, we all felt like family

Our family’s first experience at a U.S. Hereditary Angioedema Association (HAEA) conference was amazing! I must admit that I’m usually a bit wary of large organizations with major sponsorships, just because I’m sometimes skeptical about potential biases. However, I was pleasantly surprised — and thrilled — by my experience at…

Voices for change in a village of rare disease advocates, part 1

This column is the first in a series of interviews with a mother, a daughter, and a spouse about each one’s hereditary angioedema advocacy journey. In today’s healthcare environment, advocacy has never been more critical. While politics often complicate conversations around healthcare, one truth remains: People living with rare…

Travel plans for an HAE conference include caution

I was superexcited to hear that this year’s US Hereditary Angioedema Association summit is in Baltimore, as that’s my husband’s hometown. His family still lives in that area, and given his mother’s decline, we were planning a trip back east sometime soon anyway. Even though my daughter Leah and…