Columns

How the space-time continuum is affected by caregiving

“But I’ve been gone for hours!” the central character will say. “You’ve been gone a few minutes,” another character might reply. And no matter how much the protagonist tries to convince the other person, clocks and settings prove that they weren’t gone for more than a minute. What movie am…

How being an HAE caregiver led me to awareness and advocacy

“Too bad there isn’t a children’s day!” one of my children declared. We had just wrapped up a great Father’s Day breakfast, where we had inadvertently referred to the fantastic Mother’s Day breakfast I had received a month earlier. “You do get a children’s day,” I quipped. “It’s called Christmas…

The confusion that comes when HAE patients feel good

The music had ceased, and the platform guests were gone, but the audience remained in their seats, slightly stunned at what had just transpired. I stood in the door of the backstage area, still wearing my headset, chuckling at the crowd’s reaction. The featured day of this annual conference (whose…