What’s happening? Why can’t I fit into these pants? I just wore them last week. The waistband is so tight it’s painful! I ask my family, “Can you see how swollen I am?” I had no idea what was happening to me, other than my sense that I looked fine…
Columns
“You sound terrible,” my friend told me. She was correct. I was in my sixth week of a dry, wheezing cough. A cold I caught from one of my children quickly became an upper respiratory infection that terribly exacerbated my asthma. I was diagnosed with asthma in 2023, so I…
Hello, and welcome to my column. My name is Natalie, and I’m a 59-year-old rare disease patient, along with several of my family members. This column will focus on my most recent rare disease diagnosis: hereditary angioedema (HAE). I named my column “Dancing with Rare Disease” because in addition…
“You volunteered me to do what?” In 2016, our oldest son came home from school excited about an international festival taking place there in a few days. His class chose the country of Nepal. Students could make flags and posters or write a short essay on the country. But our…
At 17, Hollie Amadio began a nine-year search for answers before being diagnosed with hereditary angioedema. Now, she’s an advocate, fighting for faster diagnoses and greater awareness.
“Oh, that’s why they’re bad,” is what we’re supposed to say. The last decade has seen a rise in popularity of fictional villain origin stories. Whether it’s a segment in a movie about the hero of the story or a full feature film, many franchises have begun rewriting the history…
My screenwriting class sat in stunned silence as they stared at the picture on the screen. Finally, light chuckles filtered through the room. “Whenever you think someone has already done it,” I said to them, “remember this picture.” On the screen was the infamous meme of Dwayne “The Rock” Johnson…
There wasn’t a person on earth who knew more than I did at my 38th week of pregnancy. That’s what I thought, at least. With an incredible OB-GYN team in my city, a sister who served as my “virtual” obstetrician before that was even a thing, an overly attentive husband,…
My heart sank as I walked the length of the terminal. Hartsfield-Jackson Atlanta International Airport is considered the busiest airport in the world, and I felt like the millions of travelers it serves yearly were all in Terminal D. To make matters worse, every gate I passed had…
Usually, there’s screaming. Other times, there’s writhing and doubling over. But more often than not, there’s screaming. Every May around Mother’s Day, it’s easy to find a video where men, and occasionally young teenage girls, try a labor-pain simulator. Under normal circumstances, the simple contraption, a standard transcutaneous electrical…
Recent Posts
- 1-year trial data: Orladeyo cuts swelling attacks in young children
- 1 lonvo-z dose keeps most HAE patients attack-free up to 3 years
- For many of us, becoming a patient advocate wasn’t optional
- FDA extends Orladeyo approval to children as young as 2
- With chronic illness, we can’t brush off holiday stress so easily