Rare diseases usually don’t play nice with each other. They can land those of us who have them in a catch-22 scenario where it feels like we lose no matter what. I am one of many in this oh-so-lucky club of multiple rare diseases. I’ve been part of the…
Guest Voice
Every chronic illness community is subject to incorrect information circulating about the condition. Whether it’s about causes, symptoms, or potential cures, no chronic disease is immune to misrepresentation. Hereditary angioedema (HAE) is no exception. As someone diagnosed with HAE, I’ve heard a plethora of fallacies. It can be…
Managing hereditary angioedema (HAE) is complicated. Navigating family dynamics is also complicated. But managing family dynamics alongside HAE is incredibly complicated. Let’s start from the beginning. I am the youngest of eight children. My parents, Natalie and Daryl Sirota, adopted me from Ukraine when I was a…
Recent Posts
- HAE treatment for preventing swelling attacks wins approval in Canada
- Recurring, severe abdominal pain may be sign of angioedema in children
- Discovering the importance of writing down explicit instructions
- New trial data show lasting cuts in HAE attacks with long-acting drug
- The joy of meeting fellow members of the Bionews family