At 17, Hollie Amadio began a nine-year search for answers before being diagnosed with hereditary angioedema. Now, she’s an advocate, fighting for faster diagnoses and greater awareness.
HAE Hub
Despite a doctor suggesting the possibility, caregiver Danita LaShelle Jones wasn't ready for her daughter's hereditary angioedema diagnosis. It took time, but eventually she was able to accept their new reality.
Even with long-term preventive treatment, many people with hereditary angioedema still sometimes have swelling attacks that require on-demand treatment, a review study finds.
Recent Posts
- Common anti-nausea drug triggers intestinal swelling: Case report
- Oral HAE therapy may improve control after patients switch treatments
- I’m proud of how my disability advocacy has grown over time
- Limited access to angioedema treatment leads to delays in care
- FDA review brings oral HAE attack treatment closer to approval