“Are you OK?” my husband, Paul, asked, his voice laced with concern. The question seemed out of the blue and took me off guard. After a long day of work, running errands, and wrangling kids, I’d finally settled into bed to engage in my favorite downtime activity of watching crime…
From the Caregiver's HAErt — Danita LaShelle Jones

Danita currently calls Madison, Alabama, home. She and her husband raise four exceptional children, one of which lives with hereditary angioedema — Ladybug. As a caregiver, Danita hopes that her column will show other caregivers and patients that they’re not alone. Championing the idea to “inform the world,” she seeks to reveal HAE in such a way that even if it’s rare for an individual to have it, it isn’t rare for everyone to know about it.
This column will be a little different from the ones I usually write. Normally, I’ll start with a story that celebrates the underdog, the person who had to come from behind to achieve a victory. By the end, I’ll have tied the tale neatly into our hereditary angioedema journey with…

“No!” my mom’s voice bellowed. I immediately laughed. I couldn’t see her, but I heard the undertone of laughter in my mother’s voice. She was answering — or wasn’t — my very loud “Hey, Ma!” from another room in the house. Because we were a few weeks away from my…
With all odds against him, it was his last chance to win the game. During a football game in November 1984, the University of Miami was set to beat Boston College, leading 45-41. Although Boston College had possession of the ball, because they were more than 60 yards away from…
“You actually trust him to babysit?” the woman asked me. Although it wasn’t my first time hearing it, the question still took me off guard. When our four children were younger, I was a stay-at-home mom. Even though our oldest children were in school, the twins had yet to reach…
“I feel like it’ll be a little easier when they start moving,” my friend said as we had lunch in a local sandwich shop. A laugh bubbled up and escaped my mouth before I could stop it. Thankfully, my friend wasn’t offended. But it was clear that I was laughing…
My legs were shaking, sweat was pouring down my face, and, because of the previous 24 minutes, my lungs were gently alerting me that a puff from my trusty inhaler was imminent. My laid-back trainer casually discussed his new media content endeavor as I executed a wall sit at my…
The entire day felt like a blur. Due to scheduling mishaps, a misunderstanding of departure time, and construction-related traffic delays, I had about 30 minutes to get from the airport entrance to the gate. Thankfully, I made the flight, and as the plane taxied down the runway, I concluded that…
The butter was at room temperature, the eggs were properly separated, the milk was measured correctly, and the oven was at the perfect temperature. My mother was about to make her famous pound cake. Although I wasn’t a cake person growing up, I loved it when she made pound cake…
To promote better health, the organization I work for is releasing a series of fitness and cooking shows to help people restart or jump-start their healthy life journeys. During a staff meeting, I was excited to receive the assignment of taking over logistics for the cooking portion of the online…
With knots in my stomach, I stared down from the high dive at my swimming instructor. After six weeks of learning to swim, the last part of our class was jumping off the diving board into 12 feet of water. At 11 years old, this was the most ludicrous idea…
Although I am familiar with air travel, I recently started working with an organization that requires me to fly more than I used to. Weirdly, my favorite part of the flight is the passenger safety briefing. Even though my favorite airline relies on a well-produced short video to explain passenger…
This one starts a little differently. Usually I begin my columns with a fun anecdote that connects to a story about our oldest daughter, whom we lovingly call Ladybug, and how it relates to the lesson I learned regarding her hereditary angioedema (HAE) diagnosis. At the end, I…
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