From the Caregiver's HAErt — Danita LaShelle Jones

patient's rights | Angioedema News | banner image for Danita LaShelle Jones' column, "From the Caregiver's Heart," depicting a blue wave with rows of hearts flanking it on both sides
Danita currently calls Madison, Alabama, home. She and her husband raise four exceptional children, one of which lives with hereditary angioedema — Ladybug. As a caregiver, Danita hopes that her column will show other caregivers and patients that they’re not alone. Championing the idea to “inform the world,” she seeks to reveal HAE in such a way that even if it’s rare for an individual to have it, it isn’t rare for everyone to know about it.

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Columns

In life with angioedema, sometimes we just aren’t prepared to ‘take the win’

This column will be a little different from the ones I usually write. Normally, I’ll start with a story that celebrates the underdog, the person who had to come from behind to achieve a victory. By the end, I’ll have tied the tale neatly into our hereditary angioedema journey with…

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Columns

The Tale of Two Truths

Of all the places to have a meltdown, mine happened in the parking lot of the public library. Last summer, my daughter, whom we affectionately call Ladybug, was hospitalized several times overnight due to hereditary angioedema (HAE). When she was at home, I had to administer multiple IV sticks…

Columns

Step-ball-Change Into Butterfly Needles

I am a theater person. I was introduced to it in kindergarten, majored in it in college, and have taught it at every educational level. As a result, words that would never pop into someone’s head when describing me are “doctor” or “medicine.” Those words are reserved for my amazing…

Columns

Thousands of Miles to a Hereditary Angioedema Diagnosis

The gas gauge needle settled on 3/4 full, and I sighed in relief. However, as I began the 80-mile trek home, the idea that I’d likely be stuck in traffic overshadowed my relief. I glanced in the rearview mirror to check on my daughter. There she was, curled up in her…


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