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August 30, 2024 Columns by Danita LaShelle Jones

When expected events still take us by surprise

There wasn’t a person on earth who knew more than I did at my 38th week of pregnancy. That’s what I thought, at least. With an incredible OB-GYN team in my city, a sister who served as my “virtual” obstetrician before that was even a thing, an overly attentive husband,…

September 16, 2022 Columns by Danita LaShelle Jones

Coming to Terms With Unrealistic Expectations After an HAE Diagnosis

“We know that once the baby gets here, we’ll be able to establish a schedule, and we will be more organized and finally be able to get some rest,” the woman on the television said. I laughed so hard that I thought my water was going to break. After going…

Recent Posts

  • Biocryst seeks FDA OK of Orladeyo for HAE patients as young as 2
  • Navenibart shows potential as long-acting preventive therapy for HAE
  • How phone marathons can lead to caregiver fatigue
  • Battling the heat: Giulia’s journey with HAE
  • HAE patients want new preventive treatments, survey says


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