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September 2, 2021 News by Marisa Wexler, MS

HAE Preventive Therapy Not Cost-effective, Prices Need to Drop 50%

The prices of three approved preventive treatments — Cinryze, Haegarda, and Takhzyro (lanadelumab) — for hereditary angioedema (HAE) must be reduced by more than half for these medications to be cost-effective. Those are the conclusions of a new report published by the Institute for Clinical and Economic Review,…

November 29, 2018 News by Marta Figueiredo, PhD

Therapies Reduce HAE Attacks, but Cost Too Much, Review Board Says

Long-term prevention with human formulations of the C1 esterase inhibitor — Cinryze or Haegarda — safely and effectively reduces the number of acute attacks in people with hereditary angioedema (HAE), but the therapies’ prices are too high, according to a report of the Institute for Clinical and Economic Review…

Recent Posts

  • Voices for change in a village of rare disease advocates, part 1
  • I’ve learned that severe weather and HAE have a lot in common
  • Orladeyo reduces swelling rates in severe HAE: Real-world data
  • Travel plans for an HAE conference include caution
  • Donidalorsen may improve quality of life for people with HAE


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