What to Do When You Don’t Know What to Do

The familiar ding of the message notification pulled me out of my deep concentration. Between article deadlines, productions meetings, and numerous writing consultations, I was used to pausing to answer messages from clients, actors, and editors. So I lazily picked up my phone and opened the messaging app, only to…

HAEi Offers New Advocacy Courses, Patient App in 14 Languages

HAE International (HAEi) has expanded its free online training platform to include new courses on advocacy, disease-related information, and resources. “The HAEi Advocacy Academy is the premier online learning platform for the HAE Community,” Fiona Wardman, the non-profit’s chief regional patient advocate, said in a press release.

Register Now for Global Genes’ RARE Patient Advocacy Summit

Registration is now open for Global Genes‘ 2021 RARE Patient Advocacy Summit. This year’s hybrid event will be livestreamed from California Sept. 27-29, and some seats are also available for attending the event in person in San Diego. “Here you’ll have the opportunity to connect and engage with others…