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The HAE learning curve worth mastering

See more videos

Trust instincts

Active listening

Self-trust

Early regrets

Flexible living

Treatment access

Caregiver roles

Take control

More videos

Leah Sirota, diagnosed with hereditary angioedema in 2019, shares how she prepares for medical appointments, advocates for herself, and makes confident treatment decisions.

Transcript

Learning to listen to your own needs is kind of a learning curve. It’s not really something that happens overnight.

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It’s kind of a fine balance of patience. Not only patience with others, but patience for yourself, and also really refining what you want with your life and what you want with your treatment plan.

And when you combine all of those things together, you kind of then create this desire and a stronger plan of what you really, really want in that kind of moment.

And then the last part of that is kind of the biggest part, in my opinion, which is learning to actually advocate for yourself and learning to say no to people and learning to say no to yourself, even, sometimes.

See more videos

A caregiver’s role in navigating HAE appointments
How to take control of HAE appointments and treatment decisions
Preparing for difficulties in HAE treatment access
Recalibrating the speed of life with HAE
More videos

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