Tad Rockwell, an HAE patient advocate, shares how advocacy groups can help people access specialists, navigate insurance, and find critical resources during a medical emergency.
Transcript
There’s a really potent international advocacy group that is linked into all the specialists and doctors in every geographic area.
And so me having their phone number and having access to them, especially in a medical emergency, becomes critical because they can source the resources, whether it’s, you know, battling insurance or finding a specialist that understands the rare disease.
They can source those people immediately and work with your healthcare professional to get you the treatment you need when maybe you’re not able to anymore.
