Every chronic illness community is subject to incorrect information circulating about the condition. Whether it’s about causes, symptoms, or potential cures, no chronic disease is immune to misrepresentation. Hereditary angioedema (HAE) is no exception. As someone diagnosed with HAE, I’ve heard a plethora of fallacies. It can be…
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We are all programmed in many ways: by our upbringing, our education, our faith and beliefs, our life experiences, and even our diagnoses. Changing my programming to become an empowered rare disease patient and advocate didn’t happen overnight. Long before I was diagnosed with any rare disease, including…
People with type 3 hereditary angioedema (HAE) may report more frequent swelling attacks than people with HAE types 1 or 2, according to a new survey study. The findings also suggest people with HAE type 3 may be more likely to experience potentially life-threatening throat swelling and to report…
Adults with hereditary angioedema (HAE) experience physical stress responses similar to those with other chronic conditions, such as the autoimmune condition immune thrombocytopenia (ITP), in which stress is usually not involved in disease flare-ups. A new study found that when faced with stressful tasks, HAE patients showed heart…
Biocryst Pharmaceuticals has acquired Astria Therapeutics, and with it navenibart, an investigational treatment to prevent swelling attacks in people with hereditary angioedema (HAE). Navenibart is being tested in the Phase 3 ALPHA-ORBIT trial (NCT06842823), which is recruiting patients, ages 12 and older with HAE type…
Angioedema is the formal medical term for swelling under the skin. It usually occurs as part of an allergic reaction, but has forms that are not due to allergies.
Acute angioedema often occurs as part of an allergic reaction to various allergens or triggers. These can include certain foods, insect bites or stings, medications, and natural rubber products like latex.
Angioedema and hives often occur at the same time. However, angioedema causes large, thick welts which may not be itchy, whereas hives are smaller and usually itchy.
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