Who knew that the journey to a hereditary angioedema (HAE) diagnosis could be so scary? In our search for help with our daughter Leah’s complex health issues, we saw more than 40 medical professionals. Having doctors dismiss us made me feel like we were lost in a maze or…
Discussion
Specialists treating hereditary angioedema (HAE) across Latin America largely agree with international treatment guidelines, but high costs, limited access to medications, and frequent supply interruptions may keep patients from getting the care they need, a survey has found. Nearly two-thirds of the 30 specialists surveyed across 10 countries reported…
Discussion
“You always take the same way home,” my mom said to my father. My dad glanced at my mother, smiled, and kept driving. “Habit,” he replied. We were on our way home from school, and my father was taking our usual route. My mother chuckled. My father was and is…
Discussion
I talk a lot about using my voice. As an advocate living with hereditary angioedema and multiple sclerosis, I believe in speaking up, asking questions, and making sure our experiences as patients are heard. But during a recent five-day hospitalization, I reached a point where I couldn’t. The…
Angioedema is the formal medical term for swelling under the skin. It usually occurs as part of an allergic reaction, but has forms that are not due to allergies.
Acute angioedema often occurs as part of an allergic reaction to various allergens or triggers. These can include certain foods, insect bites or stings, medications, and natural rubber products like latex.
Angioedema and hives often occur at the same time. However, angioedema causes large, thick welts which may not be itchy, whereas hives are smaller and usually itchy.
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