New Rat Model of HAE More Closely Mimics Human Disease
Researchers have developed a new rat model of hereditary angioedema (HAE) that more closely mimics the swelling episodes experienced by humans, which might improve ... Read more
Updates
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Firazyr of Limited Help with Angioedema Caused by ACE Inhibitors, Pooled Trial Data Suggest
Firazyr (icatibant acetate) does not appear to be superior to placebo or symptomatic therapies in treating attacks of angioedema (swelling) caused by angiotensin-converting enzyme ... Read more -
Oklahoma Ranks Lowest on Programs Key to Rare Diseases on NORD’s 2019 State Report Card
Oklahoma suffers more tornadoes than any other state, has the highest per-capita rate of women in U.S. prisons, ranks second in the number of ... Read more -
Rare Disease Groups Seek Public Support to Renew Newborn Screening Act in Senate
Screening newborns for genetic diseases with treatments that can prevent crippling or deadly progression, especially for rare disorders, has a ways to go in ... Read more
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Regenxbio to Develop Antibody-based Gene Therapy for Hereditary Angioedema
Regenxbio is exploring a new hereditary angioedema (HAE) treatment that harnesses viral vectors to ... -
Guidelines Compiled for Diagnosing HAE in Emergency Rooms
In a new study, researchers provide recommendations for when to consider a diagnosis of ... -
European Initiative Targets Diagnosis, Treatment of Rare Diseases
A new international consortium based in Paris, and funded largely by the 28-member European ... -
Plasma-derived C1-INH Concentrate Acts Fast, Shortens Attack Duration in Aquired Angiodema, Study Finds
Plasma-derived C1-INH concentrate is highly effective in the treatment of patients with acquired angioedema ... -
Ruconest Can Safely and Effectively Treat Acute HAE Attacks in Children, Phase 2 Trial Shows
A single dose of Ruconest (conestat alfa) was sufficient to rapidly and safely treat ... -
Macedonian Gaucher Activist Publicizes Plight of Rare Disease Patients
The challenges Vesna Aleksovska faced when she decided a decade ago to help fellow ...
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Stroke Patient Develops Orolingual Angioedema After Alteplase Administration, Case Study Reports
News
Researchers from University of Chicago Medicine reported the case of a patient who developed orolingual angioedema after the administration of alteplase (sold under the brand name Activase), and suggest how physicians should proceed in case of an emergency. The study, ... Read more