“He feels betrayed,” I said to my student as she sat in her chair. “So there are different emotions your character has to have once she realizes he’s poisoned her.” My actress nodded in agreement and repositioned herself to start the scene over. It was Shakespeare Tuesday in the theater…
From the Caregiver's HAErt — Danita LaShelle Jones

Danita currently calls Madison, Alabama, home. She and her husband raise four exceptional children, one of which lives with hereditary angioedema — Ladybug. As a caregiver, Danita hopes that her column will show other caregivers and patients that they’re not alone. Championing the idea to “inform the world,” she seeks to reveal HAE in such a way that even if it’s rare for an individual to have it, it isn’t rare for everyone to know about it.
This column will be a little different from the ones I usually write. Normally, I’ll start with a story that celebrates the underdog, the person who had to come from behind to achieve a victory. By the end, I’ll have tied the tale neatly into our hereditary angioedema journey with…

My aunt laughed as she set the beverage down on the coffee table. “Go ahead,” she coaxed, “try it!” I stared at the clear plastic cup in front of me. The liquid looked like my favorite soda (or pop, depending on what region of the U.S. you’re from), but according…
The familiar ding of the message notification pulled me out of my deep concentration. Between article deadlines, productions meetings, and numerous writing consultations, I was used to pausing to answer messages from clients, actors, and editors. So I lazily picked up my phone and opened the messaging app, only to…
The cast was revving up for the midsong dance break, with 16 counts left. Because the performers occupied the stage and the floor, I took weeks to choreograph the musical number to account for my high school students’ safety. Nevertheless, I smiled as the audience, a captivated crowd of dinner…
The narrator had me at the edge of my seat. Finally, after almost an hour, I was sure I knew how this would end. And then, plot twist! It was the friend from the beginning of the episode. My surprised yelp caused my husband, PJ, to glance up from his…
“Nope!” I said matter-of-factly to my general practitioner. “The only thing that does is make me feel loopy.” “We can’t have that,” he replied. He jotted something down on his trusty prescription pad, ripped off the top sheet, and handed it to me. “Let me know if this works for…
With seconds left in the game and our team down by only a few baskets, we were on the edge of our seats. Because our church team was smaller than most, our starting lineup didn’t have the luxury of switching out with other players. The five star athletes, all high…
It was almost over. The fine arts magnet school I attended was almost done with a Broadway-worthy, 13-show run of the school’s Christmas musical. The musical itself was a massive undertaking. “Mr. Grumpy’s Toy Shop” (an adaptation of Charles Dickens’ “A Christmas Carol”) involved over 300 students, historically…
Snacks for the van? Organized! Blankets and pillows for anyone who wants to get comfy while sleeping? Washed and ready! DVDs for the movie marathon the kids will start on the road? Check! Noise-canceling earbuds for me because of the previous items? I don’t leave home without them. Everyone’s suitcases…
I placed the final piece of clothing in my overnight bag and zipped it shut. Although we were still about 48 hours away from check-in, I was over the moon about the “staycation” my husband, PJ, and I had planned for Valentine’s Day. This particular romantic getaway was years in…
In my mind, it happened in slow motion. I didn’t have time to react in real time as my poor compact car was broadsided by a vehicle that had ill-timed the changing of the light. Sixteen-year-old me was stunned and bleeding, but grateful I could get out of the car.
The light from the dining room was the only one shining in the dark house. The hour was late, and being home from college for the summer, I figured I was the only one keeping late-night hours. But as I approached the door that led to the formal eating area,…
Recent Posts
- In life with angioedema, sometimes we just aren’t prepared to ‘take the win’
- A lived example helped me better understand my daughter with HAE
- I forget that my daughter with HAE can also face common illness
- Helping children with HAE feel more in control of their care
- Handling insurance challenges with HAE