With rare diseases, not every cloud has a silver lining
“Oh, that’s why they’re bad,” is what we’re supposed to say. The last decade has seen a rise in popularity of fictional villain origin stories. Whether it’s a segment in a movie about the…
From the Caregiver's HAErt — Danita LaShelle Jones
Danita currently calls Madison, Alabama, home. She and her husband raise four exceptional children, one of which lives with hereditary angioedema — Ladybug. As a caregiver, Danita hopes that her column will show other caregivers and patients that they’re not alone. Championing the idea to “inform the world,” she seeks to reveal HAE in such a way that even if it’s rare for an individual to have it, it isn’t rare for everyone to know about it.
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Another spinach incident reminds us it’s better to double-check
“Did someone lock the door?” It was a common question we’d hear whenever we got into the car. My father was meticulous about ensuring that the front door of our home was always locked.
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