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January 17, 2022 News by Patricia Inácio, PhD

US Patients Underreport Burden of HAE to Their Doctors, Study Says

The burden that hereditary angioedema (HAE) has on patients’ quality of life is seldom discussed during clinical visits, a U.S. study suggests. The study also found that patients fail to fully describe disease symptoms during such appointments, so their struggles are not well-documented. Therefore, researchers recommend a more patient-driven…

February 15, 2021 News by Aisha I Abdullah PhD

Stress Can Affect Patients’ Mental Health, How They Manage Their Care

Perceived stress affects how patients manage their care and influences their mental health, according to a study in people with hereditary angioedema (HAE) with C1 inhibitor (C1-INH) deficiency. Therefore, psychological interventions could increase the interest and involvement of these patients in their own care and…

Recent Posts

  • Voices for change in a village of rare disease advocates, part 3
  • HAE patients mostly attack-free after gene-editing therapy: Data
  • Navenibart continues to reduce HAE attacks in long-term trial
  • Adjusting eating habits to live better with HAE, other diagnoses
  • Deucrictibant benefits maintained as treatment for HAE: Trial data


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