Skip to content
Angioedema News logo Newsletter
Newsletter
  • About angioedema
    What is angioedema?
    Types
    • Acquired angioedema
    • Hereditary angioedema
    • Idiopathic angioedema
    • Acute allergic angioedema
    • Drug-induced nonallergic angioedema
    Causes
    Diagnosis
    Symptoms
    Living with angioedema
    • Diet
  • Treatments
    Approved treatments
    Experimental treatments
  • Featured topics
    Taking action with HAE
    • HAE and advocacy
    • Next steps after an HAE diagnosis
    • Beyond swelling: Other HAE symptoms
    • Treatment and management of HAE attacks
    • Raising a child with HAE
    • HAE triggers and prevention plan
    • HAE and preventive treatment
    • Bracing for a diagnosis
    • HAE and stress
    • Angioedema and skin care
    • View all
    Navigating HAE
    • HAE genetics
    • HAE and factor XII
    • Managing HAE medications
    • HAE and women
    • Traveling with HAE
    • HAE awareness and advocacy
    • Talking to your doctor
    • Self-care tips for caregivers
    • Exercise and HAE
    • Gut health
  • News
  • Columns
    Dancing with Rare Disease — Natalie Sirota
    From the Caregiver’s HAErt — Danita LaShelle Jones
    Living Rare, Speaking Loud — Hollie Amadio
  • What can we help you find today?

January 17, 2022 News by Patricia Inácio, PhD

US Patients Underreport Burden of HAE to Their Doctors, Study Says

The burden that hereditary angioedema (HAE) has on patients’ quality of life is seldom discussed during clinical visits, a U.S. study suggests. The study also found that patients fail to fully describe disease symptoms during such appointments, so their struggles are not well-documented. Therefore, researchers recommend a more patient-driven…

Recent Posts

  • Orladeyo approved for reimbursement in the Netherlands
  • What I learned from my first experience with rescue medication
  • Sebetralstat quickly stops HAE attack progression in study
  • Diagnosis, treatment, can thwart blocked airways from HAE swelling
  • Orladeyo effective in HAE patients of different ages, data show


Envelope icon

Subscribe to our newsletter

Get regular updates to your inbox.

Bionews, Inc.

3 W Garden St
Suite 700
Pensacola, FL 32502
Website: bionews.com
Email: info@bionews.com
Phone: 1-800-936-1363

  • About Us
  • Leadership
  • Our Culture
  • Editorial Policy
  • Advertising Policy
  • Corrections Policy
  • Terms of Service
  • Privacy Policy
  • Careers
  • Contact Us
Disclaimer

This site is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

This site is protected by reCAPTCHA and the Google Privacy Policy and Terms of Service apply.
Copyright © 2013-2025 All rights reserved.