News

3D Analysis of Facial Features May Help Treat, Diagnose HAE

Scientists in Australia and Singapore are teaming up to investigate the usefulness of Cliniface, a 3D face analysis technology, to diagnose, treat, and manage patients with hereditary angioedema (HAE). The partnership, a collaboration between Takeda Global, SingHealth in Singapore, King Edward Memorial Hospital in Western Australia, Curtin University,…

Phase 3 Trial of KVD900 as Oral, On-demand HAE Therapy Opening

KalVista Pharmaceuticals has launched a Phase 3 trial, called KONFIDENT, to test the safety and effectiveness of KVD900, an experimental oral and on-demand treatment for swelling attacks in people with hereditary angioedema (HAE). “Beginning the KONFIDENT trial represents a major milestone for KalVista,” Andrew Crockett, the company’s…

#RAREis Representation Program Promotes Equity, Diversity

Horizon Therapeutics has launched its #RAREis Representation program aimed at increasing diversity, equity, and inclusion among patients with rare diseases. There are about 400 million people worldwide living with a rare disease; for many of them, access to diagnosis, care, and treatments can be challenging. Accessing better care depends on…

Rare Disease Day Panel Opens Window to Patient Experience

BioNews, the publisher of this website, hosted a virtual panel discussion on Rare Disease Day 2022, taking a deeper dive into what it’s like to live with a rare disease, including conversations about advocacy, mental health, survivor’s guilt, treatment of minority patients, and more. The Monday event, “A…