Long-term preventive treatment with Haegarda reduced the number and severity of attacks and the use of rescue medications in people with hereditary angioedema (HAE), while improving their quality of life, a recent study has found. “These real-world findings indicate that long-term prophylaxis with [Haegarda] markedly improves important factors that…

People with hereditary angioedema (HAE) tend to experience fewer emergency room visits and hospitalizations after starting treatment with Haegarda or Takhzyro (lanadelumab), a new analysis indicates. Despite the decreasing rates, some patients still experience health emergencies while on these therapies, which researchers said highlights the burden of…

“Nope!” I said matter-of-factly to my general practitioner. “The only thing that does is make me feel loopy.” “We can’t have that,” he replied. He jotted something down on his trusty prescription pad, ripped off the top sheet, and handed it to me. “Let me know if this works for…

Many people with hereditary angioedema (HAE) have non-swelling symptoms, such as rash or fatigue, even when they aren’t having an acute swelling attack, a new study highlights. “HAE symptoms are not limited to only those experienced during HAE swelling attacks. Many different symptoms (including abdominal symptoms, pain, headache, fatigue, depression, and…

Snacks for the van? Organized! Blankets and pillows for anyone who wants to get comfy while sleeping? Washed and ready! DVDs for the movie marathon the kids will start on the road? Check! Noise-canceling earbuds for me because of the previous items? I don’t leave home without them. Everyone’s suitcases…

Long-term preventive (prophylactic) treatment with Haegarda is safe, decreases how often swelling attacks occur in patients with hereditary angioedema (HAE), and how often they rely on rescue medications to treat swelling attacks. These findings come from an open-label extension study (NCT02316353) of the Phase 3 COMPACT trial…

I triumphantly pressed enter and marveled at my epic post on social media. There were no hospital visits, no rushes to the emergency room, and no urgent phone calls to after-hour physicians’ lines. Our second-born, affectionally known as Ladybug, had gone three solid weeks without any medical incidents. What better…

I stared down at the incoming text message and completely froze. The beeps from her monitor in the pediatric intensive care unit (PICU) had finally settled into a consistent rhythm. Although our oldest daughter, whom we lovingly refer to as Ladybug, was resting, my adrenaline was still pumping from the…

Of all the places to have a meltdown, mine happened in the parking lot of the public library. Last summer, my daughter, whom we affectionately call Ladybug, was hospitalized several times overnight due to hereditary angioedema (HAE). When she was at home, I had to administer multiple IV sticks…

The prices of three approved preventive treatments — Cinryze, Haegarda, and Takhzyro (lanadelumab) — for hereditary angioedema (HAE) must be reduced by more than half for these medications to be cost-effective. Those are the conclusions of a new report published by the Institute for Clinical and Economic Review,…